Tag Archives: rare

Connecticut girl, 12, with rare disorder creates teddy bears that hide IV bags

Going to the hospital can be overwhelming for anyone. Between all of the machines, needles and being in an unfamiliar environment, it can be a scary experience — especially for a child. Ella Casano, a 12-year-old Connecticut girl who regularly receives an IV for a rare autoimmune disorder, recognized the stress that can come in… Read More »

Research may predict outcomes for newborns with rare disease

Up until now, scientists have understood that there are two main subtypes of the disease- known as diffuse and focal. Diffuse CHI affects the entire pancreas, whilst focal CHI affects just one area of the organ, forming a focal lesion. The team from Manchester now understand that focal CHI can be further categorised into two types- spreading focal lesions and isolated… Read More »